My daughter is diagnosed with ASD (around 1cm dia) in the month of October. She has no symptoms but the right heart is enlarged. We were just fortunate to find it. The doctor has advised us to fix it using either Cardioform by Goretex or ASO Septal occluder by Amplatzer. He says we do not have the option to choose which one, because the choice depends on the location and size of the hole and that can be ascertained in the cath lab only during the procedure.
I am trying to go through the previous posts. I see all the experiences are with either Amplatzer or Goretex Helix. Cardioform by Goretex has been there since last few years. It is supposed to be the latest with very less Nickel-titanium alloy(the majority of times it causes problems due to allergies). I would appreciate if someone can share their experiences with the newer version of Goretex.
I feel it makes sense to get tested for allergy to Nickel before the procedure. However, our doctor doesn’t recommend it as just the skin patch test will not be reliable. We are in USA, California. Did anyone try to do Melisa test for allergy before the procedure?
We are scheduling the procedure in the month of June (summer vacations). My daughter is in high school and she prefers to do it when schools are off.
My daughter is in the school’s basketball team and is the captain of her team. I have consulted four doctors so far and they all say that we should let her play. It won’t create a problem for her. But, as a mother, I feel troubled by the idea of letting her play every day for two hours before the procedure (we have to wait for 6more months to get it done).
Maybe other parents have been through the same. Please share your experiences. I would really appreciate that.