Living With Congenital Heart Defects by Ben's Friends

ASD/Septal Defects - Aortic and Vessel Defects - Single Ventricle Defects - Tetrology of Fallot - Transposition of the Great Arteries - Valve Defects

Living With Congenital Heart Defects

I had my closure (2ndum asd) with occluder


I’m 25. During a check up they have found that there is a hole around 16mm. Right side of the heart have enlarged a bit. Now 2 months ago i had catheter closure with amplatzer occluder. So i didn’t have palpitations before the operation. But after that during the day i ahd them a lot. Next day after discharge i thought i was dying suffocating went to ER and v1 ecg looked pretty weird to me but doc says ok (echo,ecg and xray is done).

So after 2 weeks my palpitations are lessened. and now when i lay in my bed my HR falls as small as 45-55 bpm. Which never happened prior to op. seems like my heart is working less for the same blood flow now. But when i lay down, esp on my left side, i have some palpitations. I went to doc and they used holter and looks like they are harmless extra systoles. doc said in any time you can develop arrhythmia because the device is pressing on the healthy parts and it affects rhythm. But we don’t know.

Also you have a hole so that part was supposed to be normal heart tissue. that is another factor to the arrhythmia risk. So im advised not to drink coffee or tea nor use my adhd meds. which i won’t.

What do you think about laying to the left side? it feels as if i can feel the device in me friction to somewhere. that’s probs psychosomatic feeling but I really get palpitations when i lay on the left side vs right side. Considering the heart is at the left side. Is it possible that im pressuring my heart?

What activities are risks for asd closed peopl via device?

How is palpitations?

Thanks and I hope you all recover

I too had the PFO closure with the same device, in Feb. ‘20. I felt worse and haven’t been the same ever since the surgery. My heart rate would go from very high to very low without doing anything. I had extreme fatigue and gained 10 pounds almost immediately. I have been thin my entire life. I read the side effects of clopidogrel ( Plavix) and the rest of my medications and found the culprit for me feeling so bad was side effects from clopidogrel. I started cutting the dose in half and talking half daily along with the metetoprol half a dose. What’s confusing to me is I took all the same medications before the closure and never felt this bad. Also, I’m short of breath and feel pressure on my chest most of the time. Had I known I was going to feel so awful after having the procedure done, I never would have had it. So in answer to your question I think what you are feeling is indeed a side effect of the surgery.

Maybe. I have had sinusitis and one nostril clog thing. It’s way worse now. I literally can’t breathe and I can feel the pressure on my face off. If the virus outbreak didn’t happen I would go to a doctor for sinus.

For chest pain idk. I didn’t have it. It started this week actually. I’m kinda worried if the device has fallen or is it leaking etc.

I only feel the tiny pain like something is touching my heart feeling when I lie on left side mostly.

Maybe psychological idk.

I lost weight actually. I lost like 5 pounds. I never could gain weight I’m pretty slim. Very interesting