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Living With Congenital Heart Defects by Ben's Friends

ASD/Septal Defects - Aortic and Vessel Defects - Single Ventricle Defects - Tetrology of Fallot - Transposition of the Great Arteries - Valve Defects

Living With Congenital Heart Defects

I feel awful with my new amplatizer, and on plavix. Anyone else?

I had this repair last Wednesday, Aug. 23, 2017. Put on Plavix and went downhill from there. Called surgeon Fri., but no call back. Tried Saturday and got a doc with no experience with ASD repairs. He called in a prescription for Efficent (after contacting someone else for advice) But, pharmacy would not fill without a doc statement about Plavix allergy. Also, it was $800!! Talked to him again and he seemed condescending and annoyed. Insisted I should keep taking Plavix or risk a stroke. But, he also admitted they don’t know if Plavix is necessary or not … it’s insurance only. I did not take Plavix on Saturday and started feeling better. No more chest pain, flu-like symptoms or nausea and my racing pulse went back to normal. Started to feel human again, but decided to take it today, Sunday, as a safeguard. Feeling bad again. Will call surgeon again tomorrow. Anyone else on something else? Since aspirin also reduces platelets, why can’t we take large doses of it instead? Am really displeased the surgeon did not return my call on Friday. I suspect he never got the message. :frowning: Love my cardiologist who found this problem after a Lung Specialist failed to get to the cause of my low oxygen level. Not thinking highly of this surgeon, however.

Did you have this device implanted? If so, how are you doing?

I got the device implanted in 2006. You can read my story by clicking on my profile. I did not have to take Plavix after surgery, so I don’t know what it feels like to be on it. I wish you the best.

Looks like chest pain and racing heartbeat are common side effects of Plavix.

Gail - had the same experience the day after ASD closure when my Doc changed me from Plavix to Eliquis…thought I was going to have to go to the ER. Stopped taking the Eliquis and within 8 hours started feeling much better. My Doc changed me back to Plavix and have been good so far…going on 6 months now.
Have read on this site of others having a bad reaction to Plavix…everyone is different.
JJ